European Friendship Week 2017

European Friendship Week 2017

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European Association of Cochlear Implant Users Committe

Written by Webmaster EUROCIU on .

bureau eurociu 2017

The elections took place within the Annual General Meeting EURO-CIU held on Saturday April 22, 2017 in Helsinki (Finland). The new Committee is comprised of: (Pictured from left to right)

  • Brian Archbold (UK) Adviser Newsletter.
  • Ervin Bonecz (Hungary) 2nd Vice President.
  • Beatrice Cusmai (Italy) Secretary.
  • Sari Hirvonen-Skarbö (Finland) 1st Vice President.
  • Mª Teresa Amat (Spain) President.
  • Leo de Raeve (Belgium) Adviser Scientific.
  • Fernando Giménez (Spain) Adviser Website.
  • Henri-François Baiverlin (Belgium) Treasurer.  (Absent in the photo)
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Living with a Cochlear Implant: EURO-CIU Symposium in Helsinki 20th-21st April 2017

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11th EURO-CIU Symposium and General Assembly in Finland, April 2017EURO-CIU Symposium brings together over 200 Cochlear Implant (CI) users and professionals around Finland and Europe. Spouse of the President of Finland, Mrs Jenni Haukio, will act as patroness and the opening ceremony in the Thursday morning will be opened by Minister of Social Affairs and Health Pirkko Mattila.

The programme consists of expert lectures and workshops. International lecturers arrive from around Europe and Australia. All together over 40 presentations in three different rooms. See the programme here: http://www.euro-ciu2017.fi/en/program/

Arrival info here: http://www.euro-ciu2017.fi/en/accommodation/

Please note: Parking by The Light House is free, however parking places are limited. We recommend public transportation. There may be some parking lots on the streets nearby.

When you arrive to The Light House, please register at the information desk. You will receive your name tag with the lunch tickets (in the plastic badge) for those days you have registered. Due to limited amount of seats and to ease the dining room rush, we wish to make two waves at the lunch hour and ask you kindly to move back down to the lobby, when you have finished eating. Coffees are served down at the lobby.

Our happening will be interpreted (simultaneous interpretation only in auditorium, text interpretation in every room). If you ask any questions, use the microphone, please.

Registration opens both days at 8:00. The programme begins on Thursday at 9:30 and on Friday at 9:00.

More info here: http://www.euro-ciu2017.fi/en/

Warmly welcome to Helsinki! The office of LapCI ry will be closed due to Easter from 14th until 17th April 2017.

Ulla Konkarikoski

Executive Director, LapCI ry

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Debate in UK Parliament about cochlear implants

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I am grateful for the opportunity to raise the question of the funding and assessment of cochlear implantation, and I do so as chair of the all-party group on deafness. I am pleased to see the Health Minister in his place; I know he has this issue on his radar.

The starting point is a petition calling for a review of the tests for implants approved by the National Institute for Health and Care Excellence. I have been contacted by my right hon. Friend the Member for Wolverhampton South East (Mr McFadden) and my hon. Friend the Member for Rotherham (Sarah Champion) on behalf of their constituents Lamina Lloyd and Diane Matthews respectively.

Both constituents fall foul of the Bamford-Kowal-Bench test—the BKB test. It is this aspect that concerns them and their MPs, and they want it reviewed and changed. I will come back to that later, as well as to the case of Robert Gee, a constituent of the hon. Member for Daventry (Chris Heaton-Harris), who I am pleased to see in his place on the Treasury Bench. I want to register my appreciation for Action on Hearing Loss, the Action Group for Adult Cochlear Implantation, Professor Chris Raine and the Ear Foundation for their assistance with briefings for this debate.

I shall start with papers sent to me by the Ear Foundation. Sue Archbold writes:

“I was at the World Health Organisation in Geneva for the meeting on World Hearing Day, 3rd March...with WHO for the first time confirming that cochlear implants and hearing aids are cost-effective and should be made more widely available globally”.

Link for more information

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New drug combination to regenerate hair cells

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Source: Audiology Worldnews

Researchers at the Massachusetts Institute of Technology (MIT), Brigham and Women’s Hospital (BWH), and Massachusetts Eye and Ear (Boston, MA, USA) have discovered a combination of drugs that expands the population of progenitor cells in the ear and induces them to become hair cells, reports Science Daily.

Since damage to hair cells is one of the leading causes of hearing loss, any treatment that targets hair cell regeneration could constitute a significant step forward in the search for new ways of treating hearing loss. This is precisely the area the research team is focusing on.

“Hearing loss is a real problem as people get older. It’s very much an unmet need, and this is an entirely new approach,” says Robert Langer, professor at MIT and one of the senior authors on the paper published in late February in Cell Reports. The team used specific molecules to activate mouse cochlear supporting cells in vitro so that they became proliferative and generated hair cells. The group also exposed the cells to compounds that activate another signaling pathway known as Notch to control differentiation time. Once a large pool of immature progenitor cells was obtained, the researchers added another set of substances that caused the cells to become mature hair cells.

“We only need to promote the proliferation of these supporting cells, and then the natural signaling cascade that exists in the body will drive a portion of those cells to become hair cells,” explains Jeffrey Karp, associate professor of medicine at BWH and Harvard Medical School in Boston. Another advantage of this approach is that simple administration by injection may be possible in humans.

Science Daily; McLean WJ, et al. Clonal Expansion of Lgr5-Positive Cells from Mammalian Cochlea and High-Purity Generation of Sensory Hair Cells. ED medication, Cell Reports. 2017 Feb 21;18(8):1917-1929

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Spouse of the President of Finland will be the EURO-CIU Symposium patroness

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Ulla Konkarikoski, Jenni Haukio and Pekka Lapinleimu met in the President’s official residence called Mäntyniemi.Executive Director of LapCI ry Mrs. Ulla Konkarikoski and Executive Director of Kuuloliitto ry Mr. Pekka Lapinleimu met spouse of the president of Finland Mrs. Jenni Haukio in Helsinki 18th November 2016.

– During the visit we discussed about symposium and it’s themes. We heard also about worldwide Unicef For Every Child –campaign which has begun from Jenni Haukio’s idea. In addition, we had time to discuss about the technology of cochlear implants, hearing impaired children and adults, as well as about hearing dogs, says Pekka Lapinleimu.